Canadian Organization for Rare Disorders

Results: 81



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61Canadian Organization for Rare Disorders

CORD Scholarship Application Event: Canadian MNP Network Patient and Family Education Day Date: Nov 3, 2012 (Nov 2, Networking Dinner) Location: Hyatt Regency Toronto on King, 370 King Street West, Toronto, ON The Can

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Source URL: www.raredisorders.ca

Language: English - Date: 2012-09-26 11:55:03
    62Pharmaceuticals policy / Drug discovery / Orphan drug / Orphan Drug Act / Rare disease / Pharmaceutical industry / Canadian Organization for Rare Disorders / European Organization for Rare Diseases / Food and Drug Administration / Pharmaceutical sciences / Health / Pharmacology

    Canadian Organization for Rare Disorders Canada’s Orphan Drug Policy Learning from the Best Introduction Canadians suffering from rare debilitating or life threatening diseases need an Orphan

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2009-03-24 11:08:15
    63Pharmaceuticals policy / Lipid storage disorders / Neurodegenerative disorders / Durhane Wong-Rieger / Rare Disease Day / Orphan drug / Niemann–Pick disease / European Organization for Rare Diseases / Health / Rare diseases / Canadian Organization for Rare Disorders

    Special Thanks HERO LEVEL CANADIAN ORGANIZATION FOR RARE DISORDERS Rare Disease Day

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2012-09-26 13:04:28
    64Science / Rare disease / Pharmaceuticals policy / European Organization for Rare Diseases / Canadian Organization for Rare Disorders / Rare Disease Day / Orphan drug / Durhane Wong-Rieger / Disease / Health / Epidemiology / Medicine

    Canadian Organization for Rare Disorders • 5th Rare Disease Day Conference “From Worst to First: Transforming the Rare Disease Experience in Canada” February 27-28, 2013 • Pantages Hotel Toronto, 200 Victoria St

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2013-02-25 14:17:35
    65Medical terms / Alternative medicine / Quality of life / Outcomes research / Comorbidity / Medicine / Health / Healthcare

    CANADA’S “CHANCE FOR LIFE” STRATEGY for Canadians with Rare Disorders Proposed by: Canadian Organization for Rare Disorders Introduction Canadians with rare disorders need timely access to innovative therapies. Man

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2009-03-24 11:08:30
    66Canadian Organization for Rare Disorders / Morquio syndrome / Orphan drug / Lysosomal storage disease / European Organization for Rare Diseases / Fabry disease / Rare Disease Day / Glycogen storage disease type II / Mental disorder / Health / Medicine / Rare diseases

    The LINK Canadian Organization for

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2009-04-01 16:11:55
    67Durhane Wong-Rieger / Rare disease / European Organization for Rare Diseases / Rieger / Orphan drug / PM / AM / Science / Medicine / ABC News and Current Affairs / Health / Canadian Organization for Rare Disorders

    Raptor_Pharm_Logo_2013_NoInc

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2013-11-22 13:50:08
    68Medical terms / Quality of life / Pharmacology / Medical ethics / Patient Centered Outcomes / Patient safety / Medicine / Health / Healthcare

    Chance for Life Strategy Durhane Wong-Rieger, PhD Canadian Organization for Rare Disorders 1 Chance for life: Key outcomes 1

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2009-04-08 12:53:52
    69Medicine / Canadian Organization for Rare Disorders / Health / Cord blood bank / Medical emergencies / Neurotrauma / Cord blood / Biology / Stem cells / Childbirth

    At CORD, We know there is only one way to treat a Rare Disorder. As if someone’s life depended on

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    Source URL: www.raredisorders.ca

    Language: English - Date: 2010-02-25 13:10:09
    70Rare Disease Day / Medicine / Rare disease / Orphan drug / European Medicines Agency / Orphanet / Canadian Organization for Rare Disorders / Greek Alliance of Rare Diseases / Health / Science / European Organization for Rare Diseases

    European organisation for rare diseases Activity Report 2012 & WORKPLAN 2013

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    Source URL: www.eurordis.org

    Language: English - Date: 2013-05-28 11:03:00
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